Fetal Care Program

A pregnant patient looks out a window at OHSU.

We offer advanced fetal diagnosis, treatments and services, including some you won’t find elsewhere in the Pacific Northwest. Your doctor can refer you to us any time for concerns about your baby or ultrasound, or results of your genetic testing.

Our team has:

  • Experience: We see more than 400 pregnant patients a year. 
  • Expertise: We provide care in more than 12 specialties.

You’ll find:

  • The only program in the region that keeps you and your baby in one place through diagnosis, treatment, delivery and recovery.
  • Experts in maternal, fetal and newborn medicine.
  • Advanced ultrasound, MRI and fetal monitoring.
  • Treatments that are less invasive and have shorter recovery times.
  • Support, counseling and resources throughout your pregnancy.

We work closely with:

Conditions we treat

We are the only program in Oregon with full care for spina bifida, vasa previa and Twin-Twin Transfusion Syndrome and other complications of multiple pregnancies.

Our specialists have the training and experience to treat these conditions and many more:

  • Abdominal conditions, including:
    • Gastroschisis
    • Omphalocele
    • Bowel atresias
    • Cysts
  • Congenital brain anomalies
  • Bone, muscle and joint conditions, including arthrogryposis and clubfoot
  • Congenital diaphragmatic hernia (CDH)
  • Congenital lung lesions, including congenital pulmonary airway malformation (CPAM)
  • Cleft lip, cleft palate and craniofacial disorders, including micrognathia
  • Genetic disorders, including:
    • Trisomy 21 (Down syndrome)
    • Trisomy 18 (Edwards syndrome)
    • Trisomy 13 (Patau syndrome)
    • Monosomy X (Turner Syndrome)
    • 22q11.2 deletion syndrome and other microdeletion and microduplication syndromes
  • Heart conditions, including:
    • Coarctation of the aorta
    • Complex single ventricle
    • Fetal arrhythmia
    • Heterotaxy syndrome
    • Hypoplastic left heart syndrome
    • Transposition of the great arteries (TGA)
  • Hydrops
  • Infections, including:
    • Cytomegalovirus
    • Parvovirus
    • Toxoplasmosis
  • Metabolic disorders
  • Neural tube defects, including spina bifida (myelomeningocele)
  • Tumors and other masses
  • Urinary and genital conditions, including:
    • Hydronephrosis
    • Hypospadias
    • Lower urinary tract obstruction (LUTO)

For patients

Appointments: Please ask your provider for a referral.

Questions: Call 503-418-4300.

Location

Center for Women’s Health

Kohler Pavilion, seventh floor
808 S.W. Campus Drive
Portland, OR 97239

Free parking for patients and visitors

Refer a patient

Get to know our fetal surgeons

OHSU fetal surgeons Raphael Sun and Andrew Chon.

Dr. Andrew Chon focuses on high-risk, complex pregnancies. Dr. Raphael Sun is an expert in fetal and prenatal care. Together, they are redefining what’s possible in prenatal care.

What to expect

When you’re referred

We respond to:

  • Urgent referrals on the same day.
  • Other referrals within two business days.

We’ll work with you to set up appointments that fit your schedule.

Intake phone call

Your first appointment is an intake phone call. We’ll call you to talk about:

  • Your medical and family history in detail
  • What medications you take
  • What to bring to your first clinic visit
  • Imaging scans
  • Visits with our fetal care team
  • Any support needs you have

Visiting us

The entrance to the Center for Women’s Health in the Kohler Pavilion at OHSU.

You’ll find us in the Kohler Pavilion on OHSU’s Marquam Hill campus in Southwest Portland. Go to the seventh floor of Kohler Pavilion and check in at the Center for Women’s Health.

You’ll have:

  • Advanced imaging, including a detailed fetal ultrasound to look at the baby’s anatomy and a fetal echocardiogram to look at the baby’s heart.
  • Visits with specialists to discuss your diagnosis, options and care plan

After your first visit, the rest of your appointments will depend on your diagnosis.

Support for patients

We offer:

  • Access to a team that can coordinate your pregnancy care and non-medical needs.
  • A tour of our Neonatal Intensive Care Unit (NICU), if we recommend that you give birth at OHSU.
  • Help planning your delivery.
  • Help with feeding your baby.
  • Help with family planning.
  • Support for difficult decisions, including Bridges, a nationally respected program that helps families whose babies have chronic or serious conditions.

Patient stories

Adalee and Ayla: Surviving fetal hydrops

Newborn twins with large bows on their heads.

Adalee and Ayla’s 30-week ultrasound showed fetal hydrops. That’s when too much fluid builds up in a baby’s body. OHSU surgeons placed a shunt to drain the fluid and keep Adalee and Ayla healthy until their delivery. 

Lorenzo: A pioneering spina bifida repair

A baby with a breathing tube taped to his face smiles at his mother as she holds him on her lap.

Lorenzo's mother was five months pregnant when a routine scan showed her baby had spina bifida, meaning his spine hadn’t closed fully. OHSU fetal surgeons repaired his spine before birth in the first procedure of its kind in the Pacific Northwest.

Khovny: Named for her doctors

A girl with braided hair hugs an older boy.

Khovny’s hydrops was found early in her mother’s pregnancy. She had excess fluid drained from her body until she was born at 33 weeks. Her parents named her for two of her OHSU doctors, Stephanie and Dmitry Dukhovny.

Isaac and Felix: Beating TTTS

A couple wearing face masks hold their newborn twins.

Isaac and Felix’s mother was 22 weeks pregnant when she learned her identical twins had Twin-Twin Transfusion Syndrome. The condition means the babies don’t get the right amount of blood. After surgery at OHSU, the boys went home healthy.