Resources

Rare disorders agency links:

The NIH/ORD Undiagnosed Diseases Program strives to provide answers to patients with mysterious conditions that have long eluded diagnosis and advance medical knowledge about rare and common diseases.

Giving hope wings: the national Air Charity Network matches people in need with free flights and other travel resources so they can access specialized health care faciliities.

The National Disease Research Interchange (NDRI) provides many rare disease resources, including biospecimens

School of Medicine Human Genetics Initiative

Human Genetics Initiative

Rare disorders agency links: