Immunotherapy and Cell Transplant Therapy: Resources for Patients and Families
We know bone marrow and stem cell transplants can be challenging physically, emotionally and financially. When you come to the OHSU Knight Cancer Institute, you and your family will find the support and resources you need at every step.
On this page, you’ll find:
- OHSU patient guides
- OHSU support services
- Links to more information
OHSU patient guides
Booklet
Interactive slideshows
- Intro to CHH2 and Getting Around OHSU
- Support Services
- Introduction to Transplant Therapy
- Transplant or CAR T-Cell Therapy – Staying in the Hospital
- Transplant or CAR T-Cell Therapy – Your Care in the Clinic
- Nutrition for Transplant and CAR T-Cell Therapy
- Managing Symptoms and Side Effects After Transplants
- When Your Stem Cells Come from a Donor
- Intro to CHH2 and Getting Around OHSU
- Support Services
- Introduction to Transplant Therapy
- Transplant or CAR T-Cell Therapy – Staying in the Hospital
- Transplant or CAR T-Cell Therapy – Your Care in the Clinic
- Nutrition for Transplant and CAR T-Cell Therapy
- Managing Symptoms and Side Effects After Transplants
- Intro to CHH2 and Getting Around OHSU
- Support Services
- Introduction to CAR T-Cell Therapy
- Transplant or CAR T-Cell Therapy – Staying in the Hospital
- Transplant or CAR T-Cell Therapy – Your Care in the Clinic
- Nutrition for Transplant and CAR T-Cell Therapy
- Managing Symptoms and Side Effects After Transplants
Webinars
These webinars are designed to help patients who've had a bone marrow/stem cell transplant live their best life.
- Exercise for transplant patients | Kerri Winters-Stone, Ph.D.
- Marijuana and stem cell transplants | Joseph Bubalo, Pharm.D.
- Sexual health for the female transplant survivor | Lisa Egan, PA-C
- Sexual health for the male transplant survivor | Matt Keeslar, PA-C
- Introduction to graft-versus-host disease (GVHD) | Eneida R. Nemecek, M.D., M.S., M.B.A.
- Your eye and graft-versus-host disease (GVHD) | Winston Chamberlain, M.D., Ph.D.
- Your mouth and graft-versus-host disease (GVHD) | Joel Epstein D.M.D., M.S.D.
Questions? Topics you'd like to see discussed? Email us at BMTSurvivorship@ohsu.edu.
OHSU support services
Cancer social workers
Our cancer social workers can help you and your family manage a wide range of issues. Often, we connect patients with a social worker at the first appointment. Social workers remain available after your transplant and after you transition to follow-up care.
Social workers can help you with things such as:
- Lodging and transportation
- Connecting with financial counselors
- Finding community resources and support
- Getting referrals to mental health services
- Better communicating with your care team
Insurance and financial concerns
OHSU offers help navigating the insurance and financial questions that come with transplants. You can also ask your care team about OHSU’s Medications Assistance Program.
Life after treatment
Our Bone Marrow Transplant Survivorship Program can work with you and your primary care doctor to manage any side effects or other long-term health concerns.
Nutrition services
OHSU dietitians with cancer expertise can create a nutrition plan for your specific needs. Patients with proper nutrition have better outcomes.
Palliative care
Specialists in palliative care are available to patients and families at any stage of serious illness. They can help with issues such as:
- Managing pain
- Coping
- Mental health
- Emotional or spiritual issues
- Making difficult decisions
Support for young adults
Our Adolescent and Young Adult Oncology Program offers support and services specifically for patients diagnosed with cancer between ages 15 and 39. It’s the only program of its kind in Oregon.
Support groups and classes
Find a variety of opportunities to connect with other patients or to practice yoga or mindfulness.
Additional services
Find additional resources for cancer patients and families, including:
- The Rood Family Pavilion guest house for patients and families who live outside the Portland metro area (space permitting)
- The area’s only program to support the sexual health of women affected by cancer
- Rehabilitation services
More information
Organizations
- Blood & Marrow Transplant Information Network (BMT InfoNet)
- CancerCare
- First Descents, adventures for young adults affected by cancer and other serious conditions
- Leukemia & Lymphoma Society
- Stupid Cancer, support for young adults with cancer
- Triage Cancer
Transplantation
- Transplant Basics, Be The Match; the National Marrow Donor Program
- Blood-Forming Stem Cell Transplants, National Cancer Institute
- Stem Cell or Bone Marrow Transplant, American Cancer Society
- Stem Cell Transplantation, Leukemia & Lymphoma Society
- Transplant Basics, Blood & Marrow Transplant Information Network
- Bone Marrow Transplant, CancerCare
Immunotherapy and CAR T-cell therapy
- Immunotherapy, Leukemia & Lymphoma Society
- Immunotherapy, American Cancer Society
- Immunotherapy, CancerCare
- CAR T-Cell Therapy (video), Leukemia & Lymphoma Society
- CAR T-Cell Therapy in Children and Adults with Blood Cancers (audio, with slides and transcript), Leukemia & Lymphoma Society
- CAR T-Cell Therapy and its Side Effects, American Cancer Society
- CAR T-Cell Therapy, Blood & Marrow Transplant Information Network
For caregivers
- Caregivers and Family, American Cancer Society
- Caregivers and Transplant, Be the Match
- Role of the Family Caregiver, Blood & Marrow Transplant Information Network
- Caregiving, CancerCare
- My Cancer Circle, tool for organizing help
- Caregivers’ Guide for Bone Marrow/Stem Cell Transplant, National Bone Marrow Transplant Link
- Caregivers video library, Blood & Marrow Transplant Information Network
Insurance and finances
- Cancer Finances, Triage Cancer
- Cancer Finances; A Toolkit for Navigating Finances After Cancer, Triage Cancer
- Health Insurance, Triage Cancer
- Paying for Transplant, Be the Match
- Managing Costs, Be the Match
- Managing Costs After Transplant, Be the Match
- Financial Support, Leukemia & Lymphoma Society
- Financial and Co-Pay Assistance, CancerCare
- FindHelp.org, help with the cost of food, housing, health care and more
- The Samfund, financial help for young adults after cancer treatment
- Disability Insurance, Triage Cancer
Support
- Support for you and your family, Be the Match
- Blood & Marrow Transplant Journeys; Ordinary People With Extraordinary Stories (free book for patients and caregivers), Be the Match
- Family Support Groups — Oregon, Leukemia & Lymphoma Society
Patient guides
- Blood and Marrow Stem Cell Transplantation Guide, Leukemia & Lymphoma Society
- Blood and Marrow Stem Cell Transplantation, Leukemia & Lymphoma Society
- Blood and Marrow Transplant (BMT): An Introduction to Allogeneic BMT, Leukemia & Lymphoma Society
- Immunotherapy, Leukemia & Lymphoma Society
- Understanding the Role of CAR T-Cell Therapy in Treating Cancer, CancerCare
For donors
- The donation process, Be the Match
- How marrow donation works, Be the Match
- Steps of donating peripheral blood stem cells or bone marrow, Be the Match
- The experience of donors, Be the Match
- Join the Be the Match registry
Other topics and resources
- Estate Planning, Triage Cancer
- Work & Employment, Triage Cancer
- Educational Guides & Resources, Triage Cancer
- Oregon Resources, Triage Cancer
- Video Learning Library, Blood & Marrow Transplant Information Network
- Free publications by topic and by diagnosis, CancerCare
- Physical Side Effects of Cancer, OHSU
- Social and Emotional Side Effects of Cancer, OHSU
For patients
Call 503-494-7999 to:
- Request an appointment
- Seek a second opinion
- Ask questions
Location
Knight Cancer Institute, South Waterfront
Center for Health & Healing, Building 2
3485 S. Bond Ave.
Portland, OR 97239
Free parking for patients and visitors
Refer a patient
- Refer your patient to OHSU.
- Call 503-494-4567 to seek provider-to-provider advice.
Kids and teens
Read more
Learn more about OHSU Knight Cancer Institute treatments: