STELLA Family of Studies

Support via Technology: Living and Learning with Advancing dementia

Older Asian woman working on a laptop

Welcome to STELLA!

We offer support options for families caring for those with dementia. Each option is a research study that tests ways to help families manage the challenges that come with dementia caregiving. We hope you’ll find a good fit here.

Our Story

The STELLA studies started in 2016 with a grant from the Oregon Alzheimer's Disease Research Center. Over the years, we have tested several types of the STELLA intervention including STAR-C Telemedicine, Tele-STAR, STELLA, and STELLA-FTD (pilot). Our current study, Tele-STELLA, will be active until December 2025 and we are now launching our new study, STELLA-R. You can find out more from the publications listed at the bottom of this page.

Background

All of the STELLA studies are framed by Dr. Linda Teri's work at the University of Washington. Dr. Teri found that teaching care partners the "ABCs" of caregiving helped them manage upsetting behaviors. Dr. Allison Lindauer worked with Dr. Teri to update STELLA and make it available via telehealth, which provides easier access to a wider community. You can read more in the publication below:

Teri L, McCurry SM, Logsdon R, Gibbons LE. Training community consultants to help family members improve dementia care: a randomized controlled trial. Gerontologist. 2005 Dec;45(6):802-11. doi: 10.1093/geront/45.6.802. PMID: 16326662.

Tele-STELLA
The Tele-STELLA study uses video conferencing with professional Guides and other care partners to teach the ABC approach to help manage troubling behaviors associated with dementia. Tele-STELLA is for people living anywhere in the United States

Learn more about Tele-STELLA by clicking here.

STELLA-R
STELLA-R is an online, self-directed, 8-week lesson program that teaches care partners about the ABC approach and introduces you to the different kinds of professionals that can help you on our caregiving journey. STELLA-R is for people living in Oregon, Washington or Idaho. 

Learn more about STELLA-R by clicking here.

Learn more about the differences between Tele-STELLA and STELLA-R in the graphic below or view a larger version by clicking here.

Tele-STELLA or STELLA-R

Tele-STELLA Principal Investigator

Tele-STELLA Co-Investigator

Guides

Staff

Photo of Emily Tupper

Emily Tupper, BA
Tele-STELLA Research Coordinator

Photo Coming Soon

Christina Zonker, BA
STELLA-R Research Coordinator

Headshot of woman with black hair and eye glasses, sitting in front of metal garden box

Stephanie Irish
Tele-STELLA Technology Assistant

Lindauer, A., Smith, S., Gothard, S., Mattek, N., Tran, L., & Mooney, A. (2023). ‘There’s no straight line...’ a consumer-informed intervention for FTD family care partners: the STELLA-FTD pilot study. Aging Ment Health, 27(10), 2000-2010. doi:10.1080/13607863.2023.2250741

Lindauer, A., Messecar, D., McKenzie, G., Gibson, A., Wharton, W., Bianchi, A., Tarter, R., Tadesse, R., Boardman, C., Golonka, O., Gothard, S., & Dodge, H.H. (2021). The Tele-STELLA protocol: Telehealth-based support for families living with later-stage Alzheimer’s disease. J Adv Nurs, 77(10), 4254-4267. doi:10.1111/jan.14980

Lindauer, A., McKenzie, G., LaFazia, D., McNeill, L., Mincks, K., Spoden, N., Marcella, M., Mattek, N., & Teri, L.L. (2019). Using technology to facilitate fidelity assessments: The TeleSTAR caregiver intervention. J Med Internet Res, 21(5), e13599. doi:10.2196/13599

Thomas, N.W.D., Lindauer, A., & Kaye, J. (2019). EVALUATE-AD and Tele-STAR: Novel methodologies for assessment of caregiver burden in a telehealth caregiver intervention A case study. Dement Geriatr Cogn Disord, 47(3), 176-184. doi:10.1159/000497805

Lindauer, A., Croff, R., Mincks, K., Mattek, N., Shofner, S.J., Bouranis, N., & Teri, L. (2018). “It took the stress out of getting help”: The STAR-C-telemedicine mixed methods pilot. Care Wkly, 2, 7-14. doi:10.14283/cw.2018.4

Lindauer, A., & Harvath, T.A. (2014). Pre-death grief in the context of dementia caregiving: a concept analysis. J Adv Nurs, 70(10), 2196-2207. doi:10.1111/jan.12411

Current Funders

NIH National Institute on Aging. Tele-STELLA: R01AG067546 - Ends July 31, 2026

Oregon Health & Science University Foundation through a grant from The Hart Family Foundation. STELLA-R - Anticipated end date of June 2026

Graphic of holding hands within a star icon, the logo of the Tele-STELLA Study

Contact Us

For Tele-STELLA:
Email: telestella@ohsu.edu
Call/Text: 503-701-8566

For STELLA-R:
Email: stella@ohsu.edu
Call/Text: 503-816-8310

Research Studies

View our current and upcoming caregiver research studies:

Tele-STELLA

STELLA-R

Are you a researcher wanting access to the data?

Please fill out the form below.