Provider Resources for Children and Youth with Special Health Care Needs (CYSHCN)
Available to providers in all Oregon counties
Oregon Psychiatric Access Line OPAL: Professional consultation with a pediatric psychiatrist.
Early Assessment and Support Alliance: Assessment for youth aged 12-25 experiencing psychosis.
National Human Genome Research Institute: Guide to Interpreting Genomic Reports: A Genomics Toolkit
Medical Home Portal: Information, resources and tools for primary care clinicians, their teams, and other professionals.
American Board of Pediatrics: Behavioral and Mental Health Resources for Professionals
Supporting families
Partnering with Families during a terminal illness
5 part video series demonstrating partnership between family and pediatrician for a child with Tay-Sach's disease.
1.) Opening 2.) Diagnosis 3.) Anticipatory Guidance 4.) Care Goals and Values 5.) Transitioning to End of Life
Coping with a child's death or life limiting illness Oregon resources
Peer support and navigation assistance
OR F2F HIC: English/Spanish referral form
Oregon Family Organizations: Family support organizations
OR F2F HIC: Birth anomaly resource sheets
Vaccine hesitancy
Boost Oregon: Talking with vaccine hesitant parents
Trauma
Resources related to trauma's effects on children
Workshops, seminars, and parenting classes for families
OR F2F HIC clearinghouse of training opportunities for families of CYSHCN
Supporting LGBTQ children and youth
SAMHSA: A practitioner's resource guide: "Helping Families Support their LGBT Children"
Publications
Family centered care
JAMA: I am that Parent: Physician-parents of children with rare diseases
Maternal Child Health Bureau: Standards for Systems of Care for Children and Youth with Special Health Care Needs
Lucile Packard Foundation: Challenges and Joys: Pediatricians Reflect on Caring for Children with Special Health Care Needs
American Academy of Pediatrics: Family Partnership articles
Culturally and Lingusitically appropriate services
Supporting immigrant families in Getting Services
SAMHSA: Native American and Alaska Native Culture Card
US Health and Human Services: Think Cultural Health: Guidelines from Health and Human Services
Diversity Connection: Becoming a Culturally Competent Health Care Organization
Georgetown.edu: National Center for Culturally Competent Care
National Prevention Information Network: Cultural competence resources for providers
OHSU Diversity Resources: Online resource about cultural practices. Available to OHSU staff and students.
Disclaimer
Inclusion of resources on our site does not imply endorsement nor does exclusion mean we do not think it is valuable. We work to keep our list of resources current and relevant but it is not exhaustive.
Contact us: 855-323-6744 (English) 833-990-9930 (español) contact@oregonfamilytofamily.org