Disability Research Directory
How to use this directory
The OHSU Experts portal and the OHSU Study Participation Opportunities page are excellent resources for finding OHSU researchers working in the field of disability.
- The OHSU Experts portal is a searchable directory of over 1500 researchers and 75 research units at OHSU. You can use the search tools to find OHSU researchers who have worked in your field of interest, then browse their topic areas, publications, grants, research networks, and more.
- The OHSU Study Participation Opportunities page lists current research studies being conducted at OHSU. By searching for relevant studies, you can find researchers working in your area of interest.
Some researchers working in the field of disability may not appear in these resources. Below, we provide a list including information about researchers working in the OHSU Institute on Development & Disability.
Tips for your search
- When you enter a term in the search box, a drop-down menu will appear. Try clicking both the "concept" and "matching text" search options, as they may return different results.
- Try using related terms. For example, try "motor neuron disease" and "neurodegenerative disease" in addition to "amyotrophic lateral sclerosis."
- Try using both full terms and acronyms. For example, "AAC" and "augmentative and alternative communication" may return different results.
- Try using MeSH subject headings.
- Try the "advanced search" feature. To find it, click the gear icon to the left of the search box. On the Advanced Search page, you can search for exact phrases or identify words to exclude from your search.
- Try the "copy/paste text - find expertise" feature. To find it, click the gear icon to the left of the search box. On the copy/paste text page, you can enter free text which will be analyzed to identify relevant concepts, which are then automatically searched in the OHSU Experts directory. You might try entering a manuscript abstract, the specific aims of a grant, or a funding announcement.
- Try selecting one or more conditions from the Medical Condition(s) list at the top of the form, then click the "Search" button.
- Make sure the Participant's Age field is set to the appropriate option. For example, if you select "Amyotrophic Lateral Sclerosis" from the Medical Condition(s) list but leave Participant's Age set to "Show studies that include minors," the search will not return any results.
- Try entering search terms into the "Search by Keywords" box, then click the "Keyword Search" button.
- The listing for an individual study includes a description of the study, the name of the principal investigator, and a contact person (who may or may not be the PI). To find contact information for the PI, if not listed on the study page, try searching for them in the OHSU Experts portal, or using a search engine such as Google to search for the PI's name and "OHSU" (e.g. "Jane Smith OHSU").
- Diagnoses
- Autism
- Cerebral palsy
- Activities
- Communication
- Learning
- Speech
- Language
- Mobility
- Impairments
- Blindness
- Paralysis
- Developmental disability
- Researcher or lab name
OHSU Disability Researchers
A
Kristi Atkins, M.A. - atkinskr@ohsu.edu
Service utilization and developmental outcomes for infants and toddlers with complex medical histories, augmentative and alternative communication interventions for young children
B
Tamara Bakewell, M.A. - bakewell@ohsu.edu
Children with special health needs, family experience
Steven Bedrick, Ph.D. - bedricks@ohsu.edu
Aphasia, augmentative and alternative communication, autism spectrum disorder, machine learning, assessment and evaluation
Patricia M Blasco, Ph.D. - blascopa@ohsu.edu
Early Intervention, mastery motivation, executive function, children born low birth weight (LBW) and preterm
Katherine Breithaupt, O.T.D., OTR/L - breithak@ohsu.edu
Down syndrome, feeding, constraint-induced movement therapy, transition age youth, autism
Ittai Bushlin, M.D., Ph.D. - bushlin@ohsu.edu
Epilepsy, genetics, status epilepticus
C
Felicity Case, PT, D.P.T., PCS - casef@ohsu.edu
Developmental disability, wheelchair, equipment, gait
Erin Cochran, M.A., O.T.R./L. - cochraer@ohsu.edu
Down syndrome, pediatric feeding, assistive technology, NICU developmental outcomes
Alexandria Cook, B.A. - cooal@ohsu.edu
Communication, child development, disability, professional development, caregivers
Amy Costanza-Smith, Ph.D. - costanza@ohsu.edu
Language disorder, training, Down syndrome, communication disorder
Daniel Crowder, M.D. - crowderd@ohsu.edu
Program development, education, quality improvement
D
Maureen DeLongis, LCSW - delongis@ohsu.edu
Intellectual disability and mental health, transition, siblings
Jill Dolata, Ph.D., CCC-SLP - dolataj@ohsu.edu
Communication disorders, assessment, autism spectrum disorders, automatic speech recognition, language
Nancy Durben, P.T. - durbenn@ohsu.edu
Chronic pain, bleeding disorders
Susanne Duvall, Ph.D. - duvall@ohsu.edu
Executive function, autism spectrum disorder, cognition and neuropsychology, preterm birth, brain tumor
E
Rhonda M Eppelsheimer, M.S.W. - eppelshe@ohsu.edu
Mental health and disability, spirituality and disability, community service evaluation, policy and research, adolescent health transition
F
Infant feeding disorders
Erika Finanger, M.D. - finanger@ohsu.edu
Clinical trials, muscular dystrophy, spinal muscular atrophy, neuromuscular disease
Eric Fombonne, M.D. - fombonne@ohsu.edu
Autism, epidemiology, mental health, genetics
Kelsey Frazier, M.A., CCC-SLP - frazieke@ohsu.edu
Cleft lip and palate, pediatric feeding disorders, dysphagia
Kurt Freeman, Ph.D., ABPP - freemaku@ohsu.edu
Spina Bifida, integrated care, behavioral intervention, continence, single subject design
Melanie Fried-Oken, Ph.D., CCC-SLP - friedm@ohsu.edu
Assistive technology, augmentative and alternative communication, communication impairments, severe disabilities, neurodegenerative disease
G
Brittany Gurgel, P.T., D.P.T., P.C.S. - gurgel@ohsu.edu
Lower extremity constraint-induced movement therapy, cerebral palsy, spinal muscular atrophy
H
Trevor A. Hall, Psy.D., ABPdN - halltr@ohsu.edu
Measure development, critical care, brain injury, post-intensive care syndrome, interprofessional collaboration, outcomes
Susan J. Hayflick, M.D. - hayflick@ohsu.edu
Neurodegeneration, genetic, brain iron
Penny Hogarth, M.D. - hogarthp@ohsu.edu
Genetic, movement disorders, neurodegeneration, brain iron
Amy Holley, Ph.D. - holleya@ohsu.edu
Pediatric pain, acute pain, chronic pain, risk and resilience
Willi Horner-Johnson, Ph.D. - hornerjo@ohsu.edu
Health and healthcare disparities impacting youth and adults with disabilities, reproductive health, intersectionality and compounded disparities
K
Alexander Kain, Ph.D. - kaina@ohsu.edu
Speech intelligibility, voice conversion, dysarthria, alaryngeal speech, automatic pronunciation analysis
Laurie King, Ph.D., PT, M.C.R. - kingla@ohsu.edu
Balance disorders laboratory, balance training interventions
Kristin Knight, M.S., C.C.C.-A. - gilmerk@ohsu.edu
Pediatric ototoxicity, pediatric hearing loss
ADHD, learning disabilities
L
Susan Lattimore, RN - lattimor@ohsu.edu
Hemophilia, bleeding disorders, health disparities, access to care, health surveillance
M
Martina Mancini, Ph.D. - mancinim@ohsu.edu
Balance disorders laboratory, balance training interventions
Alison J. Martin, M.A., Ph.D. - martial@ohsu.edu
Children and youth with special health care needs, cross-systems care coordination, transition to adult health care
Deirdre McLaughlin, M.S., CCC-SLP - deirdre@ohsu.edu
Augmentative and alternative communication, brain-computer interface, assessment and intervention practices for complex communication needs
Aimee Mooney, M.S., CCC-SLP - mooneya@ohsu.edu
Primary progressive aphasia, dementia, augmentative and alternative communication, speech and language therapy, tele-practice
N
Mina Nguyen-Driver, Psy.D. - nguyendr@ohsu.edu
Hemophilia, metabolic disorders, craniofacial, Down syndrome
O
David Oleson, R.P.T. - olesond@ohsu.edu
Bleeding disorders, gait
Emily Olsen, Ph.D. - olsenemi@ohsu.edu
Neurodevelopment, neuropsychology, epilepsy, cognitive outcomes, memory
P
Betts Peters, M.A., CCC-SLP - petersbe@ohsu.edu
Augmentative and alternative communication, brain-computer interface, assistive technology, alternative access, amyotrophic lateral sclerosis
Kersti Pettit-Kekel, M.S. - pettitkk@ohsu.edu
Autism spectrum disorder, evidence based practice
Randall Phelps, M.D., Ph.D. - phelpsr@ohsu.edu
Functional assessment, health services, health disparities
Juan Piantino, M.D. - piantino@ohsu.edu
Traumatic brain injury, concussion, imaging, neurocritical care, glymphatics
Joseph D. Pinter, M.D., M.B.A. - pinterj@ohsu.edu
Down syndrome, spina bifida, congenital brain malformations, fetal neurology
Q
Emily Quinn, Ph.D. CCC-SLP - quinnem@ohsu.edu
Language interventions, intellectual and developmental disabilities, augmentative and alternative communication
R
Childhood obesity, youth with developmental disabilities, education of psychologists and medical professionals about developmental disabilities
Andrew Riley, Ph.D. - rileyand@ohsu.edu
Parenting, integrated care, behavioral intervention, dissemination and implementation
Epilepsy, Dravet syndrome, Lennox Gastaut syndrome, tuberous sclerosis, cortical dysplasia
S
Benjamin W Sanders, MD, MSPH, MS - sanderbe@ohsu.edu
Screening, early intervention, health informatics, primary care, mobile health
Hannah Sanford-Keller, M.S., CCC-SLP - sanfordh@ohsu.edu
Autism spectrum disorder, cleft lip and palate, healthcare access
Lindsay Sauvé, M.P.H. - sauv@ohsu.edu
Sexual health education for people with disabilities, transition to adulthood
Sage N. Saxton, Psy.D. - saxtons@ohsu.edu
Premature infants, NICU, family centered care, postpartum mood and anxiety disorders
Bethany Sloane, P.T. - sloaneb@ohsu.edu
Assistive technology, cerebral palsy, early mobility, torticollis/plagiocephaly, global health
Kelsey Smith, M.A. - smitkels@ohsu.edu
Hemophilia, bleeding disorders, menorrhagia, health disparities, access to care
Raegan Smith, Ph.D. - smithrae@ohsu.edu
Neurodivergent/neurodiverse identities, relationship and sexual health, transition to adulthood
Kim Solondz, O.T. - solondzk@ohsu.edu
Transition to adulthood for youth and young adults with intellectual and developmental disabilities, constraint-induced movement therapy for children with hemiplegia
Elizabeth Super, M.D., FAAP - supere@ohsu.edu
Obstructive sleep apnea, Down syndrome
W
David Wagner, Ph.D. - wagnedav@ohsu.edu
Social determinants of health, family- and systems-based intervention, access to care, chronic medical conditions, children and adolescents
Anna Wilson, Ph.D. - longann@ohsu.edu
Chronic pain, pediatric pain, pain-related disability, family risk for chronic pain
Pediatric stroke, neurogenetic disorders, neurodegeneration with brain iron accumulation disorders, dystonia, cerebral palsy
Margaret Wolf, M.S., O.T.R./L. - wolfma@ohsu.edu
Down syndrome
Carter Wray, M.D. - wrayc@ohsu.edu
Ketogenic diet; epilepsy surgery; genetic causes of epilepsy
Y
Vijayshree Yadav, M.D., M.C.R., FANA, FAAN
Neurology, multiple sclerosis, neuroimmunology
Larissa Yoshino, M.P.H. - yoshino@ohsu.edu
Media and communications, public health issue framing, and policy
Z
Katharine Zuckerman, M.D., M.P.H., FAAP - zuckerma@ohsu.edu
Developmental disabilities, autism, health care disparities, health care access and quality