What is Cystic Fibrosis?

Cystic fibrosis is an inherited disorder that causes repeated lung infections, digestive problems, and other complications. It is progressive, meaning it worsens over time. Read more about cystic fibrosis, diagnosis, and treatment here. 

If you think you or a loved one may have cystic fibrosis, please talk to your primary care provider or pulmonologist about being tested. If your testing indicates you are likely living with cystic fibrosis, a referral to an accredited cystic fibrosis center may be made. Click here for information on referring to our program. 

A Team-Based Approach

OHSU's accredited Adult Cystic Fibrosis Program is part of a comprehensive Cystic Fibrosis Care Center that provides high-quality, specialized care for those with CF and their families.  

Managing cystic fibrosis can take a village, and excellent CF care requires a multidisciplinary approach. Our team-based practice model includes clinicians, nurses, fellows, social workers, dieticians, pharmacists, researchers, other specialists, and, of course, you! 

Our Commitment to You

We pledge to...

•    Offer the most up-to-date care based on the latest CF research and our experience
•    Learn about you and your CF so we may deliver the individualized care
•    Involve you in your care, also known as “shared decision making”
•    Ensure access to our clinic by various means (e.g. clinic visits, phone calls, MyChart)
•    Provide updates on the latest advances in cystic fibrosis care
•    Offer you the opportunity to participate in clinical trials which you may qualify for
•    Make efforts to continuously improve our center and to involve our patients in that process

Articles & Publications: OHSU Adult CF team members as authors and/or citations

Kimple, AJ, Senior, BA, Naureckas, ET et al. Cystic Fibrosis Foundation otolaryngology care multidisciplinary consensus recommendations. Int Forum Allergy Rhinol. 2022; 00 1- 15. https://doi.org/10.1002/alr.22974

S. Soltman, D. Gardner, A. Swift, 79: A patient satisfaction survey regarding the use of telemedicine for outpatient CF endocrinology and diabetes care during the COVID-19 pandemic. Journal of Cystic Fibrosis, Volume 20, Supplement 2, S40, November 2021; https://doi.org/10.1016/S1569-1993(21)01504-6

Antos, NJ, Savant, AP. Cystic fibrosis year in review 2020: Section 2 pulmonary disease, infections, and inflammation. Pediatr Pulmonol. 2021; 1- 14. https://doi.org/10.1002/ppul.25459

Muirhead, CA, Palmrose, W, Condren, M, et al. A clinician survey of use assessment, documentation, and education about cannabis in persons with cystic fibrosis. Pediatr Pulmonol. July 2021; 1- 9. https://doi.org/10.1002/ppul.25563

Sarah Soltman, Rebecca A. Hicks, Farah Naz Khan, Andrea Kelly, Body composition in individuals with cystic fibrosis.
Journal of Clinical & Translational Endocrinology, Volume 26, 2021, 100272, ISSN 2214-6237, https://doi.org/10.1016/j.jcte.2021.100272. (https://www.sciencedirect.com/science/article/pii/S2214623721000247)

Please visit the CFF COVID-19 Community Questions & Answers page for frequently updated information specific to people living with CF.

CDC Vaccine information page 

OHSU COVID-19 Resources and Information